Our Mission
The Telomere Project funds research toward treatments and cures for telomere-related pulmonary fibrosis.
Inherited mutations that shorten telomeres are the most common known genetic cause of familial pulmonary fibrosis, a progressive, irreversible and ultimately fatal lung disease. We direct our support to leading laboratories working to understand this disease and turn that understanding into therapies.
Funding research toward treatments and cures for telomere-related pulmonary fibrosis by partnering with leading labs at Columbia, Harvard / Boston Children's and Johns Hopkins.
Supporting patients and families affected by telomere-related pulmonary fibrosis, including hosting community events such as Thrive Tribe gatherings.
Our Priorities
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We make targeted grants to leading laboratories studying telomere-related pulmonary fibrosis, supporting work that moves from understanding the disease toward treatments and a cure. Our current research partners are Dr. Christine Kim Garcia (Columbia University), Dr. Suneet Agarwal (Boston Children's Hospital / Harvard Medical School) and Dr. Mary Armanios (Johns Hopkins).
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We are assembling a best-in-class Scientific Advisory Board to provide guidance and recommendation to our research regarding what innovations may have the biggest impact for patients.
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We are forging scientific and medical partnerships with public and private sector organizations that can help advance our mission.